Before I continue our story I want to share more on how you can help. In the last few years between NICU, RSV/Adenovirus/Pneumonia stay, and this most recent round of hospital time, it has occurred to me most people don't know how to help. Most people ask "Let me know if I can do anything", … Continue reading My Guide to Helping Families with a Child in the Hospital
After part one I got a lot of messages! Thank you so much everyone. Many of you stated you hoped things didn’t get worse. Well, from where I sit they didn’t... We finally got to our MRI slot. I dreaded this. I was scared. I had been holding it together all day and I did … Continue reading Not Again…Part 2
We didn't fall off the face of the earth...but we did find ourselves living in the hospital again.
Did you know approximately 1 in 10 babies is born too early (before 37 weeks)- just in the US?! Did you know that being born too soon puts the child at risk for more health conditions than you can possibly count - from heart and lung issues to mental and learning disabilities to issues with … Continue reading November is Prematurity Awareness Month
A temporary sigh of relief! The breathing treatment worked and his stats are improving. He still requires high amounts of oxygen support but for the moment we are ok. We still don’t know on the blood work. If it comes back not so great we are still getting transferred. If his breathing worsens again we … Continue reading Nightmare Come True (Part 4 and Final)
I often get double checked on my distance when sharing my adventures with my son. With my upcoming backpacking trip people keep asking how far I think we’ll go each day. And then their jaw drops to the floor when I answer 12-15 miles. Most people don’t realize my background. I’m an ultra distance trail … Continue reading Going the distance…with an infant?! (Originally posted on AllWomenAllTrails.com)
Reality check. Nightmare was just beginning. Second night in the hospital and little man’s oxygen stats drop and drop and don’t come back up. And this is already after having to wake him to get him a new IV. We try increasing oxygen again and again and again but nothing, no improvement. Doctor has been … Continue reading Nightmare Come True (Part 3 of however many more it takes to tell the story)