Not Again… Part 1

We didn’t fall off the face of the earth….but sadly we didn’t vanish because we were on some epic mountain adventure.

Quite the opposite. Spent the week living at Children’s Hospital. A place very quickly becoming another home away from home.

Friday afternoon wee man spiked a fever and started complaining about pain. He was falling asleep very unusually and randomly. By midnight he had hit 104 and by 4 am his pain was specifically in his back and by 5:39 am we were in the ER.

I quickly learned that back pain in young kids is the equivalent of chest pain in adults. It is not normal or good and often signals something truly wrong. Trying to be as nice as one can to a two year old while hunting down the cause we started by ruling out things that were simple to test for and treat – UTI and reoccurring pneumonia. Of course it wasn’t either of these. I’ve never seen a doctor so disappointed in negative test results.

Wee man kept falling asleep very randomly. Anyone who know him knows he normally take extreme measures of convincing to sleep at all.

My wee man was clearly in pain. He didn’t really want to move or play. He was still falling asleep randomly. At this point the doctor was very concerned about something rarely seen and often overlooked- an infection in the spine somewhere. You see all we know is his back hurts and he had a pretty reasonably high fever. He’s two – he’s not capable of telling us more specifically where it hurts. The fact that he’s narrowed it down to his back in and of itself is a really frickin big deal! We are talking about a kid who never complains about pain (even when he should).

So onto blood work. Cultures take 24-48 hrs to grow but could help narrow down the type of infection. CBC and CRP (C-Reactive Protein, an inflammatory marker) can give an answer to immediate severity of infection or even potentially rule it out. Well it didn’t. They were both elevated – a lot.

Insert here a freaking out mom’s rant about hand washing and kissing kids:

WASH YOUR DAMN HANDS (and your phones- seriously). DON’T KISS THE KIDS! This includes extended family unless you have permission. Teach your kids these basics too! Don’t hug and kiss others without permission – this also teaches them to respect boundaries! Teach your kids to wash their hands! It’s a fairly simple thing that can be fun. Soap and water doesn’t work – try hand sanitizer! There are actually studies that kids do a better job washing their hands with it anyways. But my point is still the same: WASH YOUR HANDS AND DON’T KISS PEOPLE!

-Frustrated Mom

Anyways….

At this point we now know a whopping two things – he definitely has an infection and his back hurts. It’s determined that to get proper care he needs to be transferred to a different hospital. We went to our closest Children’s Hospital but they are much smaller than the main campus. With his pain and safety concerns (potential for ripping out his IV) we made the decision to transport by ambulance.

At this point I feel like full on crazy secretary mode. His dad is out hunting, and though I’ve sent text updates I know he hasn’t received any of them, so I’m frantically trying to figure out how to reach him. At the same time I need my car to somehow make it to the different hospital. Oh and I forgot to eat breakfast – so getting that squeezed in is a must too. Luckily I thought to grab an instant oatmeal cup. I was also smart in the fact that I thought to pack a bag of basics….after all last time we ended up at the ER we were admitted.

Paramedics arrive – did you know they use car seats in ambulances whenever possible? I didn’t! They strap the car seat onto the gurney just like you would in your car using the seat belt installation method. I felt bad – I kept having to leave my son alone with strangers (nurses and hospital staff perfectly capable of watching him) while I ran back and forth to the car getting what we needed. At least I was able to grab his favorite car blanket and a couple of his toys.

I fully expected him to scream throughout the ambulance ride. Boy was I wrong. He thought it was awesome! They gave him a stuffed tiger (he got 2 just on this day!) and loved that he could easily see out the back windows of the rig. He could see some airplanes in the sky and there was another ambulance going to the same place behind us, which he thought was super cool to watch.

How cool to be able to see out the back windows so well?! And yes – definitely brought his weighted blanket in the ambulance! Thanks AMR EMS and Paramedics for the safe ride.

Somewhere in this chaos I managed to mass message my whole neighborhood looking for help, tell my mom, my grandparents, his dad’s mom, and our friend his dad was hunting with. Between everyone people teamed up to get my car to me at the main Children’s Hospital and get his dad on the phone with me and send him home from his hunting trip (which sucks).

Getting to the main hospital was a hurry up and wait game. We reviewed everything that had happened so far with the doctors there and determined they still agrees with the other doctor’s thoughts. Wee man needed an MRI. At his age it is impossible to sit perfectly still for 40-60 min so an MRI has to be sedated. This also means getting it scheduled requires 5x the amount of people. And because we didn’t know what was causing the infection they didn’t want to treat it until we had a better idea. So we spent several hours waiting…waiting for Dad to get there, waiting for my friends to arrive with my car, waiting for our slot to get him an MRI, waiting for potential answers. Waiting = lots of movies….or I should say lots of watching the same 3 movies over and over (Minions, Despicable Me 3, and Cars 3).

To be continued….

One thought on “Not Again… Part 1

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