I’ve spent a lot time thinking and rewriting how I would share about this. How I would share about a nightmare come true. I wrote a draft basically telling everyone to F***ing wash their hands and cover their mouths. I wrote a draft that probably was a wee be too sciency for most.
Today we are home! Those words. We’ve said them before coming home from NICU. Doing a happy dance (yes literally) when we got told we’re going home.
Yesterday we did that happy dance all over again.
On Valentine’s Day I got a call from my wee man’s child care provider he had a low fever and wouldn’t stop crying. After 6 days of a yo-yo fever and no other obvious symptoms I took him in to get checked out. Strep and flu negative but a bit of a red throat. Aka – no big deal probably just a little cold give it a few more days.
Next day urine reaks…I’m talking his pee only diaper smelled like the worst poopy one he’s had… REAKS. Ok so it must be a UTI.
Nope. Culture comes back negative and now he has a cough. 24 hours after cough develops its way worse and now sounds like wheezing too. To the ER
“Sounds like croup.” Treat for croup – responds – pediatrician agrees the following day.
Now it’s Wednesday. Night before had been up and down. Morning ok. After nap little man sounds horrible. I’m thinking it’s the strider (sounds kinda like wheezing but more high pitched sound that comes with croup). Hot shower….still just standing there looking at me like he can barely breathe.
Pediatrician has an immediate opening so we head there and find out he’s actually wheezing. Thinking it’s just the virus effects on his preemie lungs. He responds to a couple nebulizer treatments and sounds and looks better. So we go home with the same medication for over night with plans to re-assess the following day.
We never made it to the following day.
To be continued…