This one is for all the special needs mommas (and daddy’s) out there.
When you have a kid you never think of needing any sort of therapy for the child in their first few years of life. Yea maybe when they’re older they’ll fall and break and ankle and need a little physical therapy after. But that’s really all you consider.
When you’re told you’re at risk for pre-term labor, no one tells you ANYTHING about what that really means.
When you’re in the NICU they kinda mention you might need to continue therapy outside the hospital. They mention that maybe in a few years some disabilities might appear.
But no one tells you of the reality.
Therapy starts in the hospital. Then again as soon as you can manage to set up services when you get home.
We started with just occupational therapy (OT). Then a few months in it became apparent that more help was needed. So add an early childhood education specialist (ECSE).
Now it’s being noticed that major motor skills are lagging and uneven. While OT can work on this, she really needs to focus on sensory issues and fine motor skills. So add physical therapy (PT).
As we keep working on eating more solid foods we’re struggling with allergies and sensitivities along with simply getting enough calories from solids so we could wean. Now we not only need to see an allergist we add a pediatric dietician.
So now we have four different specialties coming to our home. Some weekly, some every other and some sporadically.
We’ve finally got a kid who’s doing great in major motor skills- walking and just about running. But his verbal vocabulary is almost non existent. No “momma” “dadda” here. Though we know he can. He likes to tell the dogs to “sit” ( which more often sounds like shit 😂) and I’m pretty sure he’s trying to say “this”. He communicates- just not with words. So here comes speech therapy.
And all the while we’re on a waiting list to see a specialty team that works with children with developmental struggles. Who knows how long that will be or what other list of therapists they will have to add. (Are there even anymore specialties???)
Oh and nope we haven’t hit that few years mark. This all before the age of 2.
So to all you others wondering how to do it. Hang in there. You’re not alone.